What is Bladder Exstrophy?
The exstrophy/epispadias complex is a congenital birth condition
that affects the bladder, the urethra, the genitals and the pelvis.
Bladder exstrophy is the most common form of the complex,
epispadias is at the minor end of the spectrum with cloacal
exstrophy being the most severe form.
Bladder exstrophy/epispadias occurs in approximately 1 in 30,000
- 50,000 live births and can sometimes be noted ante-natally. It is
more likely to occur in males than in females and the risk of
having a second child with bladder exstrophy/epispadias is
approximately 1 in 100. If a parent has bladder exstrophy the
incidence of having a child with the condition is approximately 1
in 70. It is not known what causes bladder exstrophy/epispadias,
however the problem occurs somewhere between the 4th-10th week of
pregnancy when various organs, tissues and muscles begin to form
layers that separate, divide and fold. It is thought that bladder
exstrophy/epispadias is not inherited, however ongoing research is
looking into this. Bladder exstrophy/epispadias did NOT occur
because of anything the mother or father did or did not do during
Bladder exstrophy/epispadias is a surgically correctable birth
defect, however it must be remembered that each child is unique,
therefore each child's care is specific to individual needs.
For more information about bladder exstrophy pre and
post-surgical pictures please click on the link below which will
take you to our charity web-site http://www.bladderexstrophy.co.uk