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Bladder Exstrophy

What is Bladder Exstrophy?

The exstrophy/epispadias complex is a congenital birth condition that affects the bladder, the urethra, the genitals and the pelvis. Bladder exstrophy is the most common form of the complex, epispadias is at the minor end of the spectrum with cloacal exstrophy being the most severe form.

Bladder exstrophy/epispadias occurs in approximately 1 in 30,000 - 50,000 live births and can sometimes be noted ante-natally. It is more likely to occur in males than in females and the risk of having a second child with bladder exstrophy/epispadias is approximately 1 in 100. If a parent has bladder exstrophy the incidence of having a child with the condition is approximately 1 in 70. It is not known what causes bladder exstrophy/epispadias, however the problem occurs somewhere between the 4th-10th week of pregnancy when various organs, tissues and muscles begin to form layers that separate, divide and fold. It is thought that bladder exstrophy/epispadias is not inherited, however ongoing research is looking into this. Bladder exstrophy/epispadias did NOT occur because of anything the mother or father did or did not do during pregnancy.

Bladder exstrophy/epispadias is a surgically correctable birth defect, however it must be remembered that each child is unique, therefore each child's care is specific to individual needs.

For more information about bladder exstrophy pre and post-surgical pictures please click on the link below which will take you to our charity web-site http://www.bladderexstrophy.co.uk