Manchester Sickle Cell & Thalassaemia Service (MSCTC)
This is a patient-centred service which delivers quality care to
all our patients and their carers.
We aim to foster optimum health and wellbeing in all our
We recognised that a holistic focus involves "all that the patient
is and wants to be".
This calls for a multi-dimensional approach in which we co-operate
with other agencies.
We deliver our service through counselling, education and
continued support and advocacy in the centre, the home, the
hospital and the community.
We understand that the needs of our users can be
complex and we work hard to ensure that we meet the needs of our
We work across many areas including clinical, genetics,
disability, social, psychological and diversity issues.
In addition our team act as a key resource and work with all
groups across primary care, voluntary, secondary care, community
and local authority, to ensure the best outcomes for our
The MSCTC service is free and confidential and provides:
- Screening for these illnesses and disorders and arrange
specialist follow-up counselling
- Genetic counselling (for haemoglobinopathy e.g. sickle cell and
- Prenatal counselling
- Domiciliary visits and assessments
- Clinical Psychologist for children
- Phlebotomy service
- Expert patients programme (Staying Positive)
- User group forums
- Promotes self management
- Training and clinical support and supervision to Link Health
- Benefits advice
- Local antenatal and neonatal screening programmes
- Consultant newborn haematology clinic
- Nurse led clinic appointments for those affected by the
disorder and traits
- Referral to other agencies if required
- Structured educational programmes & health promotion e.g.
talks to schools
- Teaching of students and Health professionals
- Information dissemination such as leaflets, booklets, posters,
- Information of voluntary support groups
- Expert advice to other health professionals
- Drop-in services
Sickle Cell Society: http://www.sicklecellsociety.org/
BBC site that reflects the lives and experiences of disabled
Healthtalkonline lets you share experiences of health and
Awards / Recognitions:
The service was recently audited/peer reviewed as part of
Central Manchester University Hospitals NHS Foundation Trust
children's services. The service was described as excellent.
Received a gold Clinical Governance award 2009 and 2010
The service is supported by a multidisciplinary team comprising
of the following:
Service Manager and Lead Haemoglobinopathy Specialist
As Head of Service her responsibility is to manage the Sickle
Cell & Thalassaemia Centre.
Specialist Haemoglobinopathy Nurse
Carol Douglas; Marilyn Burton; Marcia Oliver
Carol Douglas is the Lead Counsellor for adult patients.
The counsellors provide screening and counselling for the
haemoglobinopathies, and genetic counselling and anticipatory care
for women and their partners prior to starting a family. For the
affected patients, they provide social and pyschological support,
as well as education for patients, parents, professionals,
educational institutions, child minders
and the community at large. They also provide liaison and
advocacy with multidisciplinary services within the NHS, Social
Services and voluntary organisations.
Specialist Haemoglobinopathy Midwives
Jane Raddats; Marilyn Burton
Jane Raddats is the Lead Midwife.
Jane and Marilyn both provide screening and counselling for
haemoglobinopathies as do all other counsellors, but they are also
responsible for the care of women with Sickle Cell Disease
Paediatric Haemoglobinopathy Homecare
Sarah MacDonal is one of the lead nurses to the Children
Sarah and Marcia both provide education and support for the
parents, case management for the children in their home, and
training for schools and colleges. Marcia and Sarah can be seen in
the clinic held weelky.
Dr Sonia Patel
She works with patients in the St Mary's Hospital and two day
weekly for the centre. She follows up the children referred to
Angela Sampson; Winsome Higgins; Diana
The day to day running of the office is the responsibility of
the secretaries. They take care of all the administrative work.
They are also the first point of call and all appointments are
booked by them.
Acute Trust Hospital
Lead Consultant Haemoglobinopathy
Dr Kate Ryan
Dr Ryan is responsible for the adult medical management. Her
team will also look after you if you are admitted to the MRI and
she is at the weekly clinic. The Team are also available for
medical advice if you are admitted to other hospitals.
She is a specialist nurse who works together with the consultant
to manage the patients' care in hospital or day hospital.
Lead Consultant Haemoglobinopathy
Dr Andrew Will
He is responsible for the children's and teenagers' medical
management. He will look after the children if admitted to Royal
Manchester Childrens Hospital, and runs a transition clinic with
the adult team every 4 months.
Specialist Sister In
She is a specialist sister who works together with the
consultant to manage the children' care in the Royal Manchester
He is a specialist social worker who works together with the
consultant and specialist nurses / counsellors to manage the social
care for the children under Royal Manchester Children's