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Manchester Sickle Cell & Thalassaemia Service (MSCTC)


This is a patient-centred service which delivers quality care to all our patients and their carers.
We aim to foster optimum health and wellbeing in all our patients.
We recognised that a holistic focus involves "all that the patient is and wants to be".
This calls for a multi-dimensional approach in which we co-operate with other agencies.
We deliver our service through counselling, education and continued support and advocacy in the centre, the home, the hospital and the community.

We understand that the needs of our users can be complex and we work hard to ensure that we meet the needs of our patients.

We work across many areas including clinical, genetics, disability, social, psychological and diversity issues.

In addition our team act as a key resource and work with all groups across primary care, voluntary, secondary care, community and local authority, to ensure the best outcomes for our patients.

The MSCTC service is free and confidential and provides:

  • Screening for these illnesses and disorders and arrange specialist follow-up counselling
  • Genetic counselling (for haemoglobinopathy e.g. sickle cell and thalassaemia)
  • Prenatal counselling
  • Domiciliary visits and assessments
  • Clinical Psychologist for children
  • Phlebotomy service
  • Expert patients programme (Staying Positive)
  • User group forums
  • Promotes self management
  • Training and clinical support and supervision to Link Health Visitors
  • Benefits advice
  • Local antenatal and neonatal screening programmes
  • Consultant newborn haematology clinic
  • Nurse led clinic appointments for those affected by the disorder and traits
  • Referral to other agencies if required
  • Structured educational programmes & health promotion e.g. talks to schools
  • Teaching of students and Health professionals
  • Information dissemination such as leaflets, booklets, posters, DVDs etc.
  • Information of voluntary support groups
  • Expert advice to other health professionals
  • Drop-in services

Related Links:



Sickle Cell Society: http://www.sicklecellsociety.org/

BBC site that reflects the lives and experiences of disabled people.


Healthtalkonline lets you share experiences of health and illness.


Awards / Recognitions:

The service was recently audited/peer reviewed as part of Central Manchester University Hospitals NHS Foundation Trust children's services. The service was described as excellent.

Received a gold Clinical Governance award 2009 and 2010

The Team

The service is supported by a multidisciplinary team comprising of the following:

Service Manager and Lead Haemoglobinopathy Specialist Nurse            
Verna Davis

As Head of Service her responsibility is to manage the Sickle Cell & Thalassaemia Centre.

Specialist Haemoglobinopathy Nurse Counsellors                              
Carol Douglas; Marilyn Burton; Marcia Oliver

Carol Douglas is the Lead Counsellor for adult patients.

The counsellors provide screening and counselling for the haemoglobinopathies, and genetic counselling and anticipatory care for women and their partners prior to starting a family. For the affected patients, they provide social and pyschological support, as well as education for patients, parents, professionals, educational institutions, child minders

and the community at large. They also provide liaison and advocacy with multidisciplinary services within the NHS, Social Services and voluntary organisations.

Specialist Haemoglobinopathy Midwives
Jane Raddats; Marilyn Burton

Jane Raddats is the Lead Midwife.

Jane and Marilyn both provide screening and counselling for haemoglobinopathies as do all other counsellors, but they are also responsible for the care of women with Sickle Cell Disease throughout pregnancy.

Paediatric Haemoglobinopathy Homecare Practitioner                      
Sarah MacDonald

Sarah MacDonal is one of the lead nurses to the Children

Sarah and Marcia both provide education and support for the parents, case management for the children in their home, and training for schools and colleges. Marcia and Sarah can be seen in the clinic held weelky.

Clinical Psychologist (Children)                                                          
Dr Sonia Patel

She works with patients in the St Mary's Hospital and two day weekly for the centre. She follows up the children referred to her.

Administrative Team                                                                         
Angela Sampson
; Diana Matthews

The day to day running of the office is the responsibility of the secretaries. They take care of all the administrative work. They are also the first point of call and all appointments are booked by them.

Acute Trust Hospital

Lead Consultant Haemoglobinopathy Adult                                          
Dr Kate Ryan

Dr Ryan is responsible for the adult medical management. Her team will also look after you if you are admitted to the MRI and she is at the weekly clinic. The Team are also available for medical advice if you are admitted to other hospitals.

Haematologist Nurse Specialist                                                            
Kath Stevenson

She is a specialist nurse who works together with the consultant to manage the patients' care in hospital or day hospital.

Lead Consultant Haemoglobinopathy Paediatrician                            
Dr Andrew Will

He is responsible for the children's and teenagers' medical management. He will look after the children if admitted to Royal Manchester Childrens Hospital, and runs a transition clinic with the adult team every 4 months.

Specialist Sister In Children's Haematology Department                      
Tracey Bloodworth

She is a specialist sister who works together with the consultant to manage the children' care in the Royal Manchester Children's Hospital.

Social Worker (Children)                                                                    
Jed Lalor

He is a specialist social worker who works together with the consultant and specialist nurses / counsellors to manage the social care for the children under Royal Manchester Children's Hospital.