CRF staff present talks, support workshops and volunteer at the 12th annual UK CRF Network Conference
Colleagues from the
NIHR / Wellcome Trust Manchester Clinical Research Facility
(CRF) have enjoyed the 12th annual UK CRF Network
Network supports 50 CRFs across the UK and Ireland (including
here in Manchester), with the aim of identifying, developing and
sharing systems for the delivery and management of operational
activities across clinical research and experimental medicine
The event; organised in collaboration by NIHR / Cancer
Research UK Christie CRF,
NIHR / Wellcome Trust Manchester CRF and NIHR
South Manchester Respiratory and Allergy CRF, took place at The
Royal Northern College of Music on Monday 11th and
Tuesday 12th July.
Manchester CRF Operational Director, Helen Pidd, is also the
UKCRF Network's Director. She welcomed delegates to the event on
Monday 11th July, giving an update on the Network as a
whole over the past year, and a look at what's to come.
Nick Webb, Clinical Director of the children's CRF, chaired a
plenary session on bench to bedside precision medicine which
included talks from Dr Simon Jones, Consultant in Paediatric
Inherited Metabolic Disease at Saint Mary's Hospital.
Dr Jones spoke about the diagnosis and treatment of lysosomal
diseases in Manchester, including research undertaken at
children's CRF, which has seen patients with extremely rare
metabolic diseases lived beyond six months old (read
Ava's story). He also gave a presentation on a
future clinical trial of stem cell gene therapy for Sanfilippo
disease. This study is set to take place at Central Manchester
University Hospitals NHS Foundation Trust, supported by the
Delegates were able to choose from 30 parallel workshops that
took place throughout the two-day event, to learn more about
on-going work across the UK CRF Network.
Kirstine Bowden, Nurse Manager and Jessica Lacey, Senior
Clinical Research Nurse, both from the CRF, helped to facilitate a
workshop around supporting student placements in CRFs. Jessica was
successful in applying for a full-time position at the CRF after
undertaking two practice placements there during her time as a
Professor Webb co-hosted a meeting for paediatric CRF directors
and managers, to discuss current and future pipeline work and
opportunities for collaborations.
Members of the CRF and children's CRF teams also gave their time
to volunteer at the two-day event, helping to welcome delegates,
chaperone visitors to the right rooms and sessions, and provide
support to the events team.
Helen Pidd, CRF Operational Director and UKCRF Network Director,
said: "I am delighted that this year's conference was such a huge
success and I would like to thank everyone who was involved in
making it one, including the events team, speakers, workshop
facilitators, volunteers and of course everyone who attended.
"It is very rewarding to see everyone come together every year
to catch up, meet new people, celebrate achievement and discuss
best practice, in a bid to ensure that the UKCRF Network remains a
strong support system for CRFs across the UK and Ireland."
CRF work to support research studies, including into
ground-breaking treatments for children's rare diseases and
partnership work with Manchester Vision Regeneration (MVR) Lab, is
included in the brand new UK CRF Network brochure. Read
Also, look out for videos about some of the UKCRF Network's
tools, coming soon on Twitter (@NIHR_UKCRFN).