MRI named as centre of excellence for Paget’s bone disease
Manchester Royal Infirmary has been recognised as a centre of
excellence by the Paget's Association for the treatment of Paget's
The Paget's Association, the only charity in the UK dedicated to
Paget's disease, is keen to improve patient access to appropriate
specialist care and address the apparent lack of understanding of
this common bone condition. The charity has introduced an
award, the first of its kind, to recognise hospital and
university departments which demonstrate excellence in both the
treatment of Paget's disease and research into the condition.
The MRI is one of ten UK centres to be recognised with this
Relatively few patients with Paget's disease are currently
referred to specialists with expertise in the diagnosis and
treatment of the condition. Severe pain can persist
unnecessarily and may lead to disability and fracture.
For many years Manchester Royal Infirmary (MRI) has been a major
centre for the investigation and management of patients with
metabolic bone diseases such as Paget's disease. Patients are
seen in dedicated bone clinics run by the department of
medicine. The MRI has a significant role for patients within
the Manchester area and also attracts referrals from the North West
as well as some international referrals. The NIHR (National
Institute for Health Research), Manchester Clinical Research
Facility is located on the MRI site and provides an ideal
opportunity for clinical research supported by dedicated research
staff. The work at the MRI is led by Professor Peter Selby,
Consultant Physician and Honorary Clinical Professor of Metabolic
Bone Disease, and his team:
Dr H Soran, Consultant Physician
Dr R Whitehouse, Consultant Musculoskeletal
Dr A Kirwadi, Consultant Musculoskeletal Radiologist
Dr K Hayden, Consultant Clinical Biochemist
Sr C Jagger, Specialist Nurse
Sr N Komlosy, Specialist Nurse
Professor Roger Francis, Chairman of the Paget's Association ,
said: "This initiative will ensure optimal management of
patients and provision of services to patients and their carers, as
well as encourage much needed research. The initiative
will hopefully increase awareness of the condition in health care
professionals and the general public across the UK. Patients
being referred to these centres of excellence should be reassured
that they will receive the best possible care."
What is Paget's disease?
The UK has the highest prevalence of Paget's disease in the
world. There are still some uncertainties about its causes
but there is a general understanding that it is due to a
combination of inherited and environmental influences.
Paget's disease is characterised by excessive breakdown and
formation of bone, resulting in weakened bones that can lead to
pain, severe deformity, deafness and fractures.
Further information is available from the Paget's Association
website at www.paget.org.uk.