30 years of screening, counselling and clinical care at the Manchester Sickle Cell and Thalassaemia Centre
"Building on the past
towards a brighter future"
The Manchester Sickle Cell and
Thalassaemia Centre celebrates its 30th anniversary
with a conference and family event on Sunday 27 October 2013.
The event will take place at the
Victoria and Albert Marriot Hotel, Water Street, M3 4JQ, Manchester
from 10.30am to 7pm. The entry is free for patients.
Founded in 1983, the community service delivers culturally
sensitive quality care to patients with haemoglobin disorders such
as sickle cell disease (SCD) and thalassaemia.
These disorders are commonly found in people of
African, Caribbean, Eastern Mediterranean, Middle Eastern or Asian
heritage but have been known to affect individuals of any
Haemoglobin disorders are genetically inherited blood diseases
that affect how oxygen is carried in the body. The symptoms can
include severe anaemia, intense pain, damage to major organs and
infections. Although there is no routine cure for sickle cell,
patients can be supported to manage their pain, and regular
monitoring can help to avoid life threatening complications such as
stroke. In England, sickle cell affects an estimated 14,500 people
with an estimated 240,000 carriers.
In beta thalassaemia major, the most severe form of
thalassaemia, the body is unable to produce haemoglobin - the
element in blood that transports oxygen. Patients therefore need
regular blood transfusions throughout their lives. They also need
daily treatment to deal with the iron overload that builds up in
their body. Complications include diabetes, growth problems, and
problems with puberty or early menopause.
In England, around 750 people are affected by thalassaemia major
with an estimated 214,000 carriers
The Manchester service was recently peer reviewed and described
as excellent in an audit as part of Central Manchester University
Hospitals NHS Foundation Trust children's services. It received a
gold Clinical Governance award 2009 and 2010.