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Visit our Huntington’s Disease Open Day – Saturday 22nd October

An open day for anyone impacted by Huntington's Disease in the North West will be held at Manchester Town Hall on Saturday 22nd October 2016 from 10am-4pm.

The event is being held by Manchester Centre for Genomic Medicine (MCGM) in conjunction with the Huntington's Disease Association (HDA). Huntington's disease (HD) is a serious inherited neurodegenerative disorder.

The aim of the open day is to showcase information about the latest research and to highlight the clinical care and social support available to those across Greater Manchester.Manchester Town Hall

Manchester Centre for Genomic Medicine provides genetic counselling for families and specialist clinics for those affected with the condition.  The team has an international reputation for research and participation in clinical trials. The centre has been selected as one of only six sites globally to participate in a phase 1 gene silencing treatment trial  for Huntington's Disease.

The Huntington's Disease Association provides much needed care, and advice to families affected by the disease, as well as providing information and support to professionals, including care homes around the region (http://hda.org.uk/).  The open day will highlight the care and support available to local people.

Latest research developments will be presented  by Professor Hugh Rickards, a Consultant Neuropsychiatrist and member of the European Huntington's Disease Network (EHDN), who has a specialist interest in Huntington's Disease research.  In addition there will be stalls to access information/speak with professionals as well as discussions throughout the day on topics such as how to participate in research locally, what is involved in having a predictive test and talking to children about HD.

Rhona Macleod, Consultant Genetic Counsellor at the Manchester Centre for Genomic Centre said: "We hope this open day will bring together people impacted by HD to build connections and find out more about the services available across the North West. There will be a dedicated youth section as well as updates on current HD research and keynote talks. "

The event will be held at Manchester Town Hall on Saturday 22nd October 2016 from 10.00am-4.00pm. All are welcome and registration is free: